Rodzice wobec diagnozy uszkodzenia słuchu u dziecka. Doświadczenia rodziców, pomoc profesjonalistów
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Date
2000
Authors
Journal Title
Journal ISSN
Volume Title
Publisher
Towarzystwo Naukowe KUL
Abstract
One of the important factors in the development of a child, also one that has an impaired hearing, is how he is perceived by his family and what kind of knowledge concerning himself they convey to him. The child's psyche interprets those extra-linguistic signals, which develop or ruin it. The parents' attitude towards the child depends, among others, on the stage of adaptation to the situation of having a deaf child they are at. The time each stage lasts as well as the variety and intensity of the experiences that are characteristic of it is to a large extent individual; and the feelings and emotional problems of one stage may influence the experiences of another. The article discusses the characteristics of each period / The article discusses the characteristics of each period in the child's development and forms of aid from psycho-pedagogical staff. The first period of uncertainty and search for the truth about the child's development problem is characterised by emotional vacillation, “diagnostic fever”, and attempts at looking for verification or falsification of the claim concerning the child’s disability. The second period, the shortest one, but rich in intensive and dramatic emotions, is a shock, which is most often followed by a period in which the diagnosis is rejected or its rightness is doubted, the problem is ousted from the consciousness, and sometimes the behaviour is typical of “therapeutic fever”. The next period, called mourning, is connected with the parents’ sad ness, feeling of being abandoned and misunderstood by the others, passiveness and apathy, concentration on themselves and fear of the future. The long-lasting pain caused by having “such” a child is a source of the parents’ anger with themselves, with the others and with God, and of the feeling that fate is being unfair. The feeling of “enough is enough”, when it is / Such feelings, when they are positively thought over, becomes / become the motive power to look for aid both for the child and for the parents themselves. The slow process of accepting and adapting to the child’s disability begins. Perceiving the child as a priceless gift, perceiving his unique personality traits and abilities, recognising the possibility that he will achieve some aims in his life that are valuable, albeit different from the aims that others may achieve, is a process that may last for years. In the article the conditions are pointed to which make it possible for the parents to more easily and faster pass on to the stage of accepting themselves as a disabled child’s parents (achieving a new identity) and accepting the child. Difficulties are also stressed in the relation parents - professionals. The view propagated in the literature that disabled children’s parents are always broken down, unadjusted, suffering and having improper parental attitudes is not true. Similarly, the child’s disability does not to have to be a threat to its development as a person. On the contrary - both for himself and for his parents the health problem may be a stimulator of his personal development.
Description
Keywords
rodzina z dzieckiem z niepełnosprawnością, diagnoza niepełnosprawności, przeżycia rodziców po diagnozie niepełnosprawności dziecka, akceptacja dziecka z niepełnosprawnością, pomoc rodzicom dziecka a niepełnosprawnością, family with a child with a disability, disability diagnosis, parents' experiences after a child's disability diagnosis, acceptance of a child with a disability, helping parents of a child with a disability
Citation
Rodzina: źródło życia i szkoła miłości, red. D. Kornas-Biela, Lublin 2000, s. 459-477
ISBN
83-7306-012-X